EditorialDr. Terry Jackson, whose experience with sickle cell disease motivated him to earn a Ph.D. in genetics, in his hobby garden at his home in Petersburg, Va., Dec. 19, 2022. (Carlos Bernate/The New York Times)
EditorialTiffinee Scott of Maryland, who lost her daugher, Tiarra Renne Brown Lewis, to addiction after she was prescribed OxyContin for pain associated with her sickle cell disease. (Hilary Swift/The New York Times)
EditorialRickey Buggs, 9, who often has pain in his shins caused by sickle cell disease, has his legs messaged by his mother, Lametra Scott, to ease his discomfort, at their home in Nashville, Tenn., Dec. 11, 2021. (Morgan Hornsby/The New York Times)
EditorialSadiya Haruna, who has sickle cell disease, second from right, with her father, Haruna Aliyu, brother, Aliyu Haruna, and mother, Mariya Haruna, in Kano, Nigeria, July 27, 2019. (KC Nwakalor/The New York Times)
EditorialCory Lewis, a biology major at Georgia Military College who lives with sickle cell disease and was hospitalized four times last year, performs lab work at his home in Stone Mountain, Ga., on Aug. 9, 2021. (Johnathon Kelso/The New York Times)
EditorialRyan King, who has has cerebral palsy, sickle cell disease, a spatial relationship deficit and an intellectual disability, looks at photographs in an album as his parents, Susie and Herbert King, stand by at their home in Washington on July 2, 2021. (Alyssa Schukar/The New York Times
EditorialLisa Craig receives an echocardiogram at Vanderbilt University Medical Center in Nashville, Feb. 27, 2019. (William DeShazer/The New York Times)
EditorialSisters Kami 16, left, and Kyra Crawford, 15, receive a blood transfusion, which helps manage their sickle cell disease, in San Antonio, Texas, Sept. 2, 2020. (Ilana Panich-Linsman/The New York Times)
EditorialA wooded area in Wadesboro, N.C., May 13, 2021, where Lamont Perry fled the police and died on Oct. 27, 2016. (Travis Dove/The New York Times)
EditorialHelen Obando, the youngest person ever to receive a gene therapy for sickle cell anemia, awaits a surgery in Boston, Dec. 16, 2019. (Hilary Swift/The New York Times)